It is an interesting time we live in. To travel we had to show medical forms every step of the way. Even in Salt Lake City airport. It is not easy currently to leave the country, and I’m not really sure why someone would want to leave without a good reason. Every person traveling was asked why they were traveling.
Traveling was really hard on my body. The pressure change during take off and landing sent shooting pains through my head. Not being able to lay down for so many hours. My head was just too heavy to hold up anymore.
Nothing can go smoothly when it comes to unknown conditions. Especially lots of them, not just one. Conditions that are just recently starting to be studied, looked at.
Even so, things were falling into place. Apartment booked, airplane tickets purchased.
I had no direction from Dr’s. Through hours of research I would find new disorders that would be comorbid to my condition and research those. Each one adding a piece to the puzzle. I’d find out what scans I’d need, blood work, where to go. Call around till I found the place and then contact my family Dr. I’d bring him up to speed on where I was at in my research and he would write the order I needed to travel out of state to get my MRI’s, and CINE scan.
I first learned of Ehlers-Danlos Syndrome (EDS) through a local pioneer in these medical conditions. She paved a way for many. I wouldn’t want to do what she had to do, she has blessed so many who are walking in the dark here.
I’ve wanted to write for so long. The words no longer flow from me. My mind is so confused all the time. Not able to think clearly, make sense of it. The surgeon says around day five post-op my thoughts should become more clear and I should begin to regain my focus again. I’m a former school nerd. I say former because it has been years since I’ve been able to sit and devour a book. My hope is I’ll regain my school nerd status once again.